Thursday, December 14th, 2017 at 9:34pm
A family picture from April!

This was before I had my major surgery which included a renal splenal shunt and step procedure. Thankfully that surgery helped to reduce the size of my belly! I now have a belly more suitable for beach season! 😂

I had so much fun today! I can't wait to sled ride again! I love being an active boy!

Tomorrow I have my abdominal ultrasound. Then monday repeat labs.
Hopefully, increasing my meds helps my bloodwork return to normal.

But at the end of the day we realize that we were put on this earth to do God's work. Sometimes God needs to change the direction we are walking to further develop His divine plan. Maybe God wants us to learn something new so we can help others, or maybe God wants us to meet a new friend. The possibilities are endless.

What ever is going on with my body and liver....will be okay. God's divine plan is perfect, always! Always and forever, His divine plan cannot be defeated!

Faith in God can heal us physically, emotionally or spiritually. Sometimes a healing includes 1, sometimes all.

Open your heart to the healing possibilities bc nothing is impossible!

😍😍😘😘😘

#savelucas #donatelife #donateblood #divinemercy #prayformyteam #JesusITrustinYou #manyblessings
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Save Lucas was live.Thursday, December 14th, 2017 at 9:39am
First time sled riding!!
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Save Lucas added 4 new photos.Wednesday, December 13th, 2017 at 10:00pm
Seriously I cannot sleep! IT'S SNOWING! IT'S SNOWING!

I never really had a chance to enjoy snow the past 4 years and I am so excited!

"Lucas what is the first thing you want to do when you play in the snow?"

I replied, " I want to make a snowball and throw it at Jacob!"

😂😂😂

Mom was thinking i would say build a snowman, make an igloo, shovel the snow.

Nope. Wrong again Mom!

Well I have another test of faith with my liver. The past few weeks my ammonia and liver numbers have been climbing. It was confirmed again today, my labs haven't improved.

So we have an ultrasound this week, a few med adjustments, repeat labs Monday. Hopefully the meds normalize my values. If not, I will have a liver biopsy in my near future.

I am just thankful for God's blessings and for the 2 weeks that my family and I have had as a family unit! We have been trying to establish a normal! Well, we almost got 2 weeks of normal! 😂😂😂

Nurse Pam and Mom couldn't help but to bust out laughing when Mom said "I think we made it to 1.5 weeks of normal"

And Nurse Pam quickly said "I think it's been 2 weeks of normal! We are getting there and we will get you there!"

We are getting closer to normal! 😂 2 weeks stretch of "normal" is a new record! Have to laugh at something right?! Come on...isnt that funny!

Swimming, cookies, fun with Mimi and Pap and my brothers and parents...i had a record breaking 2 weeks! God is good!

Time to saddle up...and prepare to ride to our next journey!

Jesus I Trust in You! You have been so generous to me and my family Lord and your love for us will never cease!

Ps. Daddy's airplane hit Santa the other night! 😂😂😂

#savelucas #donatelife #donateblood #JesusITrustinYou #divinemercy #Godisgood #lovemynursepam #recordbreakingweeks #laughinghelps
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Save Lucas added 4 new photos.Sunday, December 10th, 2017 at 10:23pm
Thank you for all the kind and loving messages on my last preschool picture post! You were all called by God to partake in my journey and I am so thankful for each one of you! 😘😘

This weekend was alot of fun! We made special Christmas cookies, gingerbread deer to be exact! 😂 only deer. Mimi made stars and trees. Deer deer deer that's all we could think of!

I went swimming again and loved loved loved it!!!! Mom is getting so old she had to wear a wet suit in the pool to stay warm! 😂😂 Her triathlon wet suit from 100 years ago!!! She had to tell Dad before we left home for the pool ...."if you see me calling you, grab the scissors, jump in the car and head straight to the pool....that means I'm stuck in the wet suit and I can't get out!"

That's worthy of a life alert button...."Help. I'm stuck in my wetsuit and I can get out!" 😂

Dad said "you better pack some oil." Dad is so calm an logical! What a suggestion!

So Mom packed oil! LOL! We are seriously so strange! A bag of towels and oil! We think everything is funny!

I have early morning labs tomorrow and I'm going to ask Nurse Pam if she is making this gingerbread man for Christmas! 😁😁😁

#savelucas #donatelife #donateblood #live #laugh #dontgetstuckinyourwetsuit #nursecookies #thankyoufriends
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Save Lucas added 5 new photos.Friday, December 8th, 2017 at 10:25pm
PREPARE TO BE WOWED!

I wanted to share with you my first school picture! I have come a long way!

When I received my life saving transplant, it was just in time.

Organ failure is a terrible thing at any age.

The other pictures were take about 2 weeks after transplant but look what a failing liver did to my body.

Look at my arms. My legs. My knees were larger than my thighs. I was 2.5 years old and I was too weak to walk, in fact I couldn't walk. I still crawled at 2.5 years. I was too weak to play with other kids so I always watched. Before transplant, I threw up violently 5 to 6 times a day. I was breathing 68x per minute at rest. I stopped eating bc food in my belly put too much pressure on my lungs. My body wouldn't absorb nutrients so I had diarrhea that soaked my bed multiple times a night. I cried in pain every time I fell. I became fearful of falling so I would scream a dreadful shriek until someone nestled me close. I had to drink huge syringes of vitamins a day. I wore baby cloths when I should have been wearing toddler cloths.

Organ donation and prayer made all the difference in my life!

Thanks be to God for His endless mercy and for my wonderful team at Children's Hospital of Pittsburgh of UPMC!

The beautiful girl in the newspaper....thats my Olivia, my angel and my hero!

The gift of life - the greatest gift I ever received!

#savelucas #donatelife #donateblood #divinemercy #prayformyteam #oliviamyhero
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