Save Lucas added 2 new photos.Wednesday, August 16th, 2017 at 10:34pm
What a cheese ball with my Aunt Alice!! 😁😁😁

Tomorrow I have early morning blood work with Ms. Pam 😍😍 and then a clinic appointment!

Everyone tonight was teasing me saying "Ohhh Lukie, your going to see your girlfriend Nurse Pam tomorrow! I want to see a picture Lukie, send me a picture" Ofcourse I blushed, but don't tell 🀐 Nurse Pam bc I like to play hard to get!!

Hopefully my pancreas numbers continue to trend down, although I did eat an Eatnpark cookie and a few chips tonight soooooo that may not help those numbers but come on I have been on a low fat diet for weeks, this kid wants to dig into some chips and cookies!!!

Hopefully my ammonia levels continue to trend to the normal range as well! Mom told me that high ammonia levels make me act like a puppy 🐢🐢. Hmmmm....funny you say that bc I smell pee AND I think one of my brothers peed on my pillow!

I don't know how this stuff happens a but COME ON!!!! Don't worry I put the pillow on Moms bed! Hehe

Now I see her sniffing everything saying "Did someone pee somewhere, like on my pillow?? Come on boys!" πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Thanks for your prayers for Devin! He had a successful surgery and he looks amazing!! Thank you so much!! 😍😍

#savelucas #donatelife #donateblood #mothermary #Godisgreat #prayformyteam #devin
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Save Lucas added 2 new photos.Tuesday, August 15th, 2017 at 10:40pm
Tonight two special family members, Aunt Alice and cousin Carol, drove from Maryland to see my brothers and I! I have been all smiles the entire night! 😍😍😍

Who would have ever thought that I am coming off of a major/dangerous surgery AND that last Friday I had increased ammonia levels in my blood. Who would have thought that last Friday, my ammonia levels were so high that I acted like a dog.

We know that God will use our suffering, not one ounce unwasted, to help Him with his greater plan. When your suffering, the hardest thing to understand is GOD is ONLY LOVE! Truly, it's not something that most people understand right away, it's part of everyones journey of faith.

Gods love for you is so strong, that He is forming and shaping you into something greater than you could ever imagine! Suffering is the instrument used in Gods plan, to change our direction, to point us to a new path and to help others.

God is so generous too if you trust Him! After this ammonia trial, He gave me an increase in appetite!! An appetite I haven't seen in such a long time!! 😍😍😍😍

Prayer Warriors please keep the Dobish family and baby Devin (second picture), who is at Children's Hospital of Pittsburgh of UPMC, in your prayers! Tomorrow Devin will have abdominal surgery. My Mom and his Mom, Kristin, were college roommates and basketball teamates at Allegheny College!!!

Thank You! I will post an update on Devin tomorrow! Isnt he the cutest!!? 😍😍

#savelucas #donatelife #donateblood #prayformyteam #prayfordevinsteam #devin #mothermary #Godisgreat #believe
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Save Lucas added 2 new photos β€” at Point State Park.Sunday, August 13th, 2017 at 11:04pm
I got released from Children's Hospital of Pittsburgh of UPMC today!!!!

Mom and I woke up this morning, got a pass, and walked to mass at Saint Maria Gorettis!!!

When we arrived back for my noon meds my nurse suprised us with the good news....I could go home!! Woohoo!!!

What did we do first? We decided to walk to Point state park to see the big fountain and play frisbee!! I had so much fun!!!!!! I'm turning out to be a very good frisbee player!!! 8 miles later we are beat!!!

Oh and Daddy just got home!!! What a bonus!!!

Talk more tomorrow! Thank you to everyone who took great care of me this weekend!!! Thanks for all the love and prayers!!!

#savelucas #donatelife #donateblood #prayformyteam #mothermary #divinemercy
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Save Lucas at Children's Hospital of Pittsburgh of UPMC.Saturday, August 12th, 2017 at 11:09pm
Thank you Lord! I had a much better day!! Thank you for your prayers!!! My ammonia levels have come down a bunch and my appetite at the end of the night was amazing!!!

Pheww... last night was too much excitment but we obviously know that God allows things to happen for a much greater plan! So the first thing we did was offer this suffering to God for souls. Next, we kept saying over and over "Jesus I Trust in You" We knew if we remained faithful God would provide us with peace and strength to bear this unexpected and dramatic trial. And God did provide, he gave us an awesome nurse Kristin to hang out in trauma bay 3 with until 5am.

Like I said, we spent all night in trauma bay 3 in the Emergency department as the staff worked to figure out why I was acting like I was just coming off anethesia while simultaneously acting as if i were withdrawing AND having steroid rage. I was extremely restless and while I understood the conversation I would not talk. My response to anyone's question was to pant like a dog, bounce on the bed and "paw" at mom's face. Um yah. I guess last night I thought I was a puppy dog. πŸ•πŸΆπŸΆ

"Lucas can you tell me how hold you are?"

My response: 🐢🐢

"Lucas can you tell me where you are?"

My response: 🐢🐢🐢🐢

But thank you so much for praying!!! Today i was back to being me!!!

My team is still working on figuring out exactly what happened but in time they will!

P.s. My parents will be looking for another caregiver to help Mom when Dad is away. Someone who can be on call for emergencies to watch my brothers. Or stay with my brothers during hospital stays or when I have appointments. If you know of an ACTIVE caregiver who can drive boys to school/activities and do caregiver things please message us personally. We will pay and will Interview. Life circumstances require us to be more prepared!

#savelucas #donatelife #donateblood #mothermary #Godisgreat #prayformyteam
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Save Lucas at Children's Hospital of Pittsburgh of UPMC.Saturday, August 12th, 2017 at 9:48am
In my world things happen so very fast...

I'll need you prayers again

Yesterday was an amazing day! I played outside and flew my favorite frisbee!! I went to the park and played with my brothers and aunt!

When I got home that night Mom noticed I started saying really out of place things. It's not abnormal for me to tell my family that "I love you!" a few times in a row but the way I was saying it and the number of times I said it in a row cued mom off to that's abnormal.

"Lukie I love you so much too Buddy, are you okay?"

And I repeated "yah" like 5 more times.

Then came the talking with blank stares and the goofy smiles.

So Mom called the panic button and had Mimi come over to be with my brothers while she decided if what was happening was really happening.

Mom thought maybe I was dehydrated bc my appetite has been low and I didn't drink alot during day. So she hurried and hooked me to TPN!!

Walaa!! I perked up and started playing and jumping!

Mom later put us all to bed but everytime Mom tried to go and take a shower I would start screaming.

Mom had this terrible feeling not to let me go to sleep that night so she turned on my light and the look I gave her was the final straw and off we went to the Emergency room.

My labs were off especially high ammonia levels.

The ER doc was so happy that I did not go to sleep last night at my house

Soo...back on the road and in this race.

God's got this, it's going to be Okay!

#savelucas #donatelife #donateblood #prayformyteam #mothermary #divinemercy
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